F%#k Allergies

To say my son has problematic skin is an understatement.

Trent's Skin 3/6/2012

3/6/12 This is what his entire body looks like.

Since he was a bitty baby his skin has always broken out in bleeding sores that itch and burn him. There never was a time he wouldn’t wake up with blood on the bars of his crib or scream in pain because his socks were stuck to his sores on his feet. He always itches, he always hurts. That is just how it has always been.

We started taking him to Doctors when he was around six months old specifically to find out what was wrong with his skin.

Dr: “Eczema. Here. Use this cream.”

Me: “But, um, it has steroids in it? Should I be covering my baby in this?”

Dr: “It will go away and you won’t have to use it again.”

Me: “WHY is this happening? I need to treat the problem, not the side effect of.”

Dr: “There is nothing else you can do.”

Now repeat this conversation for the next seven years of my sons life…steroidal creams, safe to say, they don’t do a damn thing.

Early 2009, we met a very open minded doctor. For the first time ever, it had been suggested that Trent might have severe allergy issues. (You can revisit that here.)

Trent and Ocelot

"Can I please just hug him one last time?"

So. We have a little boy who is allergic to dust mites, cats and mold with allergy induced asthma. We are told to buy a house with no carpet and no forced air heating or cooling systems. Get rid of our cats and buy a HEPA bagged vacuum and clean daily. No vertical blinds and everything in the home has to be able to be removable and washable.

Jump from 2009 to now. We spend all of our savings/money/everything to buy a house, a much older brick building with no carpet and no forced air. This house has a steam heat system. This is perfect for his mite allergy…however, now his skin is multitudes worse. We are told steam heat and no forced-air is perfect for soothing Eczema and not blowing allergens all over the place. However, my guess, not so perfect for mold.

There is no visible mold growth anywhere at all. Most houses in Iowa have mold. It is very humid here in the summer, reaching 90% humidity some days. Buying a cheaper wooden home would have a far higher mold potential verses a brick house built by one of the wealthiest people in our region, though both choices are about 100 years old. Buying a newer home has such a high rate of chemical uses just being built that Trent’s asthma can’t handle it. He has extreme chemical sensitivities (Yes, this is why I make soap and things. So he can breathe and so I am not packing more chemicals onto his open sores.)

Trent Reading

"Mom! Technology! I can read anything, anywhere?!"

Honestly, a new house would have been the best choice, but we couldn’t afford having a brand new home built with a steam heat system. I am, for the first time ever, realizing the amount of guilt this causes me.

Today I sit here with a colossal mortgage, a giant brick house and I should have a healthy son. I don’t and I am doubting every decision I have made in the last three years. I feel massively overwhelmed because my son can’t even go to school today because he is covered in open sores. He has never had a appetite and he is smaller than everyone else. I feel like this is all my fault because I didn’t pick the right house for him. I can’t fix him. His skin, for the first time ever, was perfect while we lived in a roach infested apartment in Las Vegas. We should have just staid there.

Oh the joys of parenthood.

Has anyone else ever dealt with this type of skin condition? Anything. Often my son asks, “When will this not hurt and just go away?” and I have nothing to say to him. We go to another specialist today and I am requesting a skin lesion biopsy. Skin cancer runs in my family and I honestly just don’t know what else to do. What I do know is that if another doctor prescribes Trent steroids and tells us it will just go away, my next post is going to be about how a spent the night in jail for assaulting a physician.

Yours, Kylee Lane

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20 Responses to F%#k Allergies

  1. Natali says:

    I hope so hard you get a real answer. But, should you end up in jail, I’ll totally hold a bake sale to raise your bail money hon. I wish I had an answer for you, but all I can offer is love and support. <3

    • Kylee says:

      Thank you. Its just so frustrating not having an answer and not being able to fix it. >.< We are MOMS! We are suppose to be able to fix everything!

      • Natali says:

        The single hardest thing about being a mom- when one of our little ones is hurt or scared and we can’t fix it. *huggles*

  2. Adam Komar says:

    “90% humility”? Freudian slip?

    It’s terrible that you all are having to deal with that so much so often. I hope you find a viable solution very soon. You’re a mom so you’re gonna worry, but you shouldn’t feel guilty. You’re doing everything you can to make things better. You just need to a doctor that will do the same. I hope you find one.

    • Kylee says:

      Yeah…just fixed that. Freudian indeed.

      Thank you. Crossing my fingers a biopsy holds some answers and then it is off to find more doctors.

  3. notobella says:

    Kylee, I’m so sorry to hear that you’re son isn’t doing so well today. I’m also very sorry to hear about the guilt you’re feeling. Rest assured, you’re doing the best you can and will continue to do so until the very end – it’s a natural emotion to be a mother and feel guilt when you feel helpless to fix things for your child. With that said, I’ve only ever seen this type of skin rash/issue once. A dear friend of mine had sores like these all over her feet, legs and hands. After trying all kinds of creams and soaps and medicines, she found out she was allergic to fleas. Not just flea bites, but fleas themselves. AND not just fleas from pets, sand fleas that live outside in the grass and trees and etc. I understand that you’re little boy has sever allergies to other things, but you may want to bring “fleas” to the attention of the doctors. Once this was figured out for my friend, they were able to help her heal and control the outbreaks. Best of luck to you and yours!

    • Kylee says:

      Will definitely bring this up at his appointment today! THANK YOU for the information! The house we just moved into, the previous owners had dogs. Even though there is no carpet (except in a small strip up the stairs) we bought a giant couch from them so it is a possibility, because after we moved it, it got worse.

  4. Rey Gonzalez says:

    Someone get Oprah on the line!!! Such a heartbreaking story 🙁 …but I always try to look for a silver lining, tell Trent we thank him for being the inspiration for the ONLY soap I use now. Your soaps have helped me with my oh-so-minor-by-comparison skin conditions! I believe w/ all my being you will find a solution! Stay strong little man!!!

    • Kylee says:

      ♥ Thank you for your kind words. I am so glad I got into natural products, I can’t even imagine bringing myself to covering him in chemicals with bleeding sores. Pure oils are the only things that don’t burn him and thankfully I always have fresh, raw materials on hand.

  5. Heather says:

    My 11 year old niece has a similar situation. She gets red blotches on her legs that are very painful and then turn to bruises and eventually yellow and go away. It looks as if someone has taken a bat to her legs. Like you, my sister has spent a tremendous amount of money on trying to figure out the cause. They finally went to a naturopathic physician and with a lot of trial and error they determined the allergy was “night shades” such as potatoes, peppers, tomatoes, eggplant..

    • Kylee says:

      A few months ago we were referred to a naturopathic physician! Our Dr honestly said, “Now you might think I am a quack, but we need to consider alternative medicine and look at all healing options” …blew my mind he was so willing to help me look for answers without steroids. We still have not been able to get an appointment, and after the biopsy, hopefully we can go in with a lot more information. Thank you for the information. 🙂

  6. Gojiro says:

    So when you lived in a very dry climate, his skin was fine, but in a very humid climate it’s not? Sounds like you need to dry the air rather than steam it.

    Then again, it could be an autoimmune disease. I have Crohn’s Disease, and although it’s a bowel condition, it affects other parts of me, too — skin, joints, etc. — because it is an autoimmune disease. Maybe talk to a doctor about that?

    Regardless, I hope you find some way to treat him successfully. I suffered with Crohn’s my entire teen years and was very thin, no appetite, etc. — just like Trent. It sucks, but eventually I found the right doctor and got on the path to health, and now I’m 45 and feel great. I just have to keep taking my meds!

    Good luck to you and Trent!

    • Kylee says:

      We tought it was the dry air too, but Iowa is extremely dry in the winter, and it has not helped. It is a battle of allergy vs eczema. I totally agree that it is all in finding the right doctor!! ♥

  7. Kimmi says:

    Kylee, you are doing everything in your power for him. You are such an inspiration to me and to everyone that knows you. This will get solved.

    <3

  8. Phineas Delgado says:

    Looks like Atopic Dermatits. Have you seen a Dermatologist? Sorry if you answered that before.

    • Kylee says:

      Yes! And yes, he has that also. We go back to another derm in about two weeks to see why it has only gotten worse.

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  10. Cory says:

    Not many blogs get me to post a comment, but I was moved by yours. I know how awful the entire process to control allergies is. Endless doctor visits, the daily chronic vigilance, the uncertainty of it all. Not to mention the concern and love for your son. I too have allergies and suffer from the outbreaks. I’m allergic to molds, cultures and yeast. Not by any skin test or doctor’s diagnosis. They often simply can’t specifically locate many allergies – they’re are too many and sometimes there are cross reactions. For me it was trial and error. Sometimes by way of a walk in the woods. Other times eating out.

    It looks like your last post was a year ago. I hope you’ve found a doctor you trutst and a viable treatment. If your son is allergic to mold, you might try cutting out anything in his diet that contains mold, cultures or dairy. I did, and this has reduced my skin condition and more serious life threatening reactions. It’s really hard to do because so many foods contain the above. To combat this I also take 10 mm of loratidine 3x week. It contains any reaction that might occur with hidden ingredients.

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